Check out this onesie that I received from a fellow mom with CF. Her child wore it and she passed it on to me. (I'm not sure if she wants me to call her out on here). It made me all teary-eyed.
adorable! At a CF walk last year my whole family wore buttons/pins that said "I wear purple because I love my wife/sister/daughter" I think you can get them from cafepress.com I still cannot get over that hair!
Omg i totally teared up seeing her in that outfit. Of course you can call me out :) It really just makes my heart smile to see that another person can actually look at their child and see them wear it for them. Its such and amazing miracle
I found your blog today while searching for other girls my age who have CF & blogs & just wanted to let you know your little girl is adorable! I also have CF (age 29) but don't have any kids.. Although I am generally healthy it's a scary thing for me. So thanks for the encouragement!
My blog definitely contains a bit "TMI" (Too Much Information) at times. But I really wanted to be very open about my journey, and I am a very open person. (And yes, people do sometimes say “Thanks for Sharing” to me in real life :) If you don’t want to read about "womanly" issues, you probably doesn't want to venture any further into my blog! ;)
I am 39 years old with cystic fibrosis. For the CFers who may be interested, my FEV1 is 115%, my genotype is dF508/R117H, and I am pancreatic sufficient. The primary way CF impacts me is chronic sinusitis and repeated bronchitis and mild pneumonia. My sputum cultures show pseudomonas aeruginosa(PA). I have only been hospitalized twice. I have been on Kalydeco since February 2015.
My husband, Greg, and I have two daughters: Lily, age 5, and Grace age 3.
I started this blog to share our journey towards conceiving our first child, and to share the information we learned along the way in case it may help other women with CF. During our struggle with infertility, this blog was a wonderful way for me to connect with other women who were dealing with similar struggles.
I now write this blog to share my life as a mom with CF! It has been an amazing journey!
2WW = Two Week Wait (the time from ovulation to menses) AF = Aunt Flo BFN = Big Fat Negative (regarding a pregnancy test) BFP = Big Fat Positive (regarding a pregnancy test) CBEFM = Clear Blue Easy Fertility Monitor CF= Cystic Fibrosis CM = Cervical Mucus CP = Cervical Position ENT = Ear Nose Throat Doctor EWCM = Egg White Cervical Mucus IUI = Intrauterine Insemination KU = Knocked Up LP = Luteal Phase O = Ovulate OPKs = Ovulation Prediction Kits OB/GYN = Obstetrician/Gynecologist PCP = Primary Care Physician PG = Pregnant RE = Reproductive Endocrinologist TTC = Trying to Conceive
5 comments:
adorable! At a CF walk last year my whole family wore buttons/pins that said "I wear purple because I love my wife/sister/daughter" I think you can get them from cafepress.com I still cannot get over that hair!
Love it! And oh wow, she is BEAUTIFUL!!
Omg i totally teared up seeing her in that outfit. Of course you can call me out :) It really just makes my heart smile to see that another person can actually look at their child and see them wear it for them. Its such and amazing miracle
Hi Kristen,
I found your blog today while searching for other girls my age who have CF & blogs & just wanted to let you know your little girl is adorable! I also have CF (age 29) but don't have any kids.. Although I am generally healthy it's a scary thing for me. So thanks for the encouragement!
Suzanne
What a gorgeous little girl!
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