Sunday, November 11, 2012

Long Overdue Update

It's been ages since I've blogged! I'm now almost 28 weeks pregnant and doing well. My only complaints are that I am having trouble sleeping and am tired all of the time. I still take a nap every afternoon, which means I don't get much done around the house, but it's become the new normal around here. Being pregnant while chasing after a toddler hasn't been too bad. Some days I feel like I am just dragging myself around, but it's totally manageable. I am so thankful that Lily still naps.

I've also been having some hip pain. I also had it with Lily, so I decided to see a chiropractor this time, and it has really helped! I don't need 800,000 pillows or an extra mattress topper this time, so that is nice.

I am gaining too much weight (although, in the CF world, that is not really a complaint) - I'm already over 25 lbs. I gained over 40lbs with Lily, and I was hoping to gain less this time, but I guess my body just likes to gain extra weight during pregnancy. I will admit that I am not eating perfectly, but my diet isn't horrible. I am just starving all the time! Oh well, I guess I will just go back on Weight Watchers after this one is born.

CF-wise, I am doing great, for which I am so thankful. However, I am very nervous about how things are going to go once the baby arrives. February through April seem to be my sick times of the year, so it should be "interesting" to see how I do with a new baby and a toddler bringing germs home. I know, whatever happens, we will get through it, but it may suck, especially if I end up needing IVs.

I am planning to look into Kalydeco once this baby arrives, but I am not very optimistic. I am extremely confident that it will work for my mutation, based on the in-vitro data, the fact that Vertex is currently doing clinical trials on my mutation, and the results one woman (who has my mutation) experienced. But, my doctor hasn't seem to keen on the idea. Before I got pregnant, he didn't seem to really want to write the script because it's so expensive, but he said he would because my insurance would cover it and he "didn't want to the be roadblock". However, now my insurance is requiring pre-authorization, so I think my doctor will have to fight to get me on it, and I'm not sure he will be willing to do that. And, even if he is, I'm not sure insurance will cover it.

And, I can't believe I forgot to mention that it is a GIRL!!!! I am so excited to have two girls. I grew up in a family of two girls, and I just love having a girl, so I am really excited to have another. Now we just need to decide on a name!


Drew and Kelsie said...

I've been a long time reader but I'm not sure if I have ever commented. I just wanted to let you know that I'm participating in the Kalydeco study right now for the R117H genotype. I'm feeling pretty confident that I have drug and not placebo. :) I hope you are able to get you dr to write the script for you!

Kristen said...

Thank you Kelsie - reading that news is a FANTASTIC way to start my day!

BTW - do you live in Texas? I am in Austin.

Maeghan said...

Yay for an update! I've been curious how you are doing.

Amy Labonte said...

Glad to read you're doing we'll! Love reading your blog- I am a mom of a CF warrior who blogs as well! Keep writing!!!

Amanda Slater Photography said...

SO GLAD to hear you are doing well!!! I'm also 28 weeks and I'm dealing with the same pregnancy symptoms as you! Hip pain and no sleep!!

Kate Watson said...

ahhh it's a giiiiirl! Having a boy is also great, i just love them being coupled :D

Lindsay said...

Glad things are going well! Looks like both our Lillian's will be getting little sisters soon!!

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