Monday, April 28, 2008

My Meds

The primary ways in which CF affects me is my lungs, sinuses, and stomach (I have acid reflux). I am lucky because I do not need to take digestive enzymes before I eat. Here is a list of all of the medications I take.


  • Rinse my sinuses with saline (to wash out junk)
  • Veramyst Nasal Spray (for my sinuses)
  • Allegra (for my allergies)
  • Albuterol (to open up my airways; I take this either via inhaler or nebulizer, depending on how wheezy I am feeling) 5-10 minutes
  • Hypertonic Saline via nebulizer (to thin the mucus in my lungs) 10-20 minutes
  • The vest (to shake the mucus out of my lungs; I can do this at the same time as albuterol and hypertonic saline) 20 minutes
  • Advair (to keep my airways open)
  • Colistin via nebulizer (an antibiotic taken every other month to kill the bacteria in my lungs) 10-20 minutes

Total Time = 25-50 minutes


  • Veramyst
  • Albuterol via nebulizer
  • Hypertonic Saline
  • The Vest
  • Advair
  • Colistin every other month
  • Pre-natal vitamins (my dr has all his CF patients take these, not just me)
  • Mucinex (to keep my mucus thin)
  • Zegrid (for my acid reflux)

Total Time = 30-50 minutes

So, as you can see, I spend 1-1.5 hours a day on my treatments. Add to that a full-time job, exercising 5 hours a week (also critical in CF care), a marriage, and a social life, and you may be able to see why time management is a big issue for me. I really don’t know how CF patients who have even more treatments do it!

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