What amazing timing - right when I decided to write a series of FYI posts about CF, the New York Times published a few very good ones.
Today's New York Times has the following articles on-line:
A Brighter Outlook for Cystic Fibrosis Patients (this is the main article)
An Expert Q & A (this has some really good - stuff that I was planning to blog about in an FYI)
Debunking the Myths of Cystic Fibrosis
What to Ask (your doctor) About Cystic Fibrosis
Clinical Trails
Neonatal Screening
Nutritional Considerations
I'm still planning to write more FYI posts, but I just wanted to take a minute and pass this along as well!
{disneyland day one}
6 years ago
1 comment:
Thank you for posting this - I'm really glad I found your blog. I used to be on the Bump fairly often, but now just lurk now and then - posting mainly on my local boards.
After TTC for a year, we found out we were pregnant and then found out afterwards that both my husband and I are Delta F508 carriers, leaving our son with a 25% chance of having CF. We wouldn't have been tested had my son not shown an Echogenic Bowel in our first ultrasound, which "disappeared" by the Level 2.
We plan on having our son tested immediately after he's born, but regardless, we are hopefully that if he does have CF, he will live a long and healthy life! We have done our research and feel reassured by the medical treatments and advancements they have made over the years.
I'll definitely keep reading - just knowing you exist gives me hope for our son. :)
Good luck with your TTC journey!
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